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Neuro-Oncology Outpatient Program

With minimal help from her mother, Nicollette walks back to her patient room from the playroom at Jonathan Jaques Children’s Cancer Center (JJCCC) at Miller Children’s Hospital Long Beach where she was making arts and crafts. In her hand, she has a hat she decorated with stickers and gems, and a flag she made which she waves back and forth. The room she returns to has been her home away from home, to her and her mother, for the past three months.

The hospital room wasn’t always their home. Prior to October of 2010, Nicollette lived in Torrance, where she attended kindergarten. She was an intelligent, bright young girl who loved ballet, horses and books.

During kindergarten, Nicollette suddenly began vomiting everyday for nearly a week. Her mother took her to the pediatrician where she was diagnosed with acid reflux and was given a prescription for it. However, relief from her stomach condition was short lived. Nicollette’s family became even more concerned when she began to suffer from painful headaches.

After another visit to the hospital, her doctor instructed her to get an MRI scan. What they discovered would take Nicollette down a tumultuous road that they could only hope her strength and perseverance could surpass. Nicollette was diagnosed with a brain tumor.

She was referred to the Jonathan Jaques Children’s Cancer Center at Miller Children’s Hospital Long Beach, where she began her care. Pediatric oncologists and pediatric surgeons consulted on her case and knew she needed surgery to remove the tumor immediately.

Unfortunately when brain tumors are removed, one possible side effect is a stroke. During the surgery, Nicollette suffered a stroke. Luckily, Miller Children’s also has the only Pediatric Stroke Center in Los Angeles and Orange counties.

After her stroke, Nicollette lost the ability to speak and walk. She had to use a wheelchair to get around in. While she was working toward recovery from her stroke, she was still receiving intense chemotherapy treatments.

From the time Nicollette saw the wheelchair she repeatedly told her mother that she wanted to stand on her own. She was extremely determined and knew she would walk again.

After a lot of hard work and focus, she regained freedom to put one foot in front of the other on her own. Just a month and a half later, she got up out of her wheelchair and never looked back.

Nicollette is currently homeschooled, but when she needs hospitalization for another round of chemotherapy or “maintenance checks,” she gets visits from a hospital teacher so she doesn’t get behind. That’s the benefit of a full-service children’s hospital so close to home. She has access to a teacher through the Child Life Program, which provides patients with individualized programs to experience normal daily childhood activities. In addition to walking, she also is speaking again. Physical therapy and occupational therapy at Miller Children’s has helped in Nicollette’s amazing feat.

Nicollette is doing well, she is scheduled to have three more cycles of chemotherapy and should be finished by early 2012. She plans to return to school, once she is both physically and emotionally ready. The JJCCC school reintegration team will be standing by when she’s ready to help do neuropsychology testing and prepare her for the transition back.

One day, she hopes to become an astronaut and at this rate it seems she can reach the stars. Nicollette is a go-getter who, against all odds, has set her goals high and is determined to achieve success, now and in the future – all at the age of 6.

The neuro-oncology program at JJCCC provides specialty oncology care for infants, children and adolescents with brain tumors, spinal cord tumors and tumors related to neurofibromatosis. Through membership in the Children’s Oncology Group, the neuro-oncology team at JJCCC provides access to the latest national clinical protocols to develop new pediatric oncology therapies for childhood brain tumors.

In addition to the multi-disciplinary JJCCC health team, the neuro-oncology team also works closely with neurosurgeons, radiation oncologists, and pediatric surgeons to provide quality, compassionate care.

Treatment & Research

The neuro-oncology care team offers multi-specialty medical care, including assessment, consultation, treatment and preventative care. The neuro-oncology team meets to review clinical cases and make recommendations on the type of therapy and other care that is most appropriate for each patient that goes through the Neuro-Oncology Clinic.

Neuro-oncology patients are often treated with appropriate conventional therapy, such as:

  • MRI and CT scans of brain and spine
  • Radiotherapy
  • Chemotherapy
  • Surgery, if needed

Clinical trials are always an option to help address the needs of each brain tumor or spinal cord tumor patient. The neuro-oncology care team and the hematologist/oncologist discuss this with the family when there is a clinical trial available that fits the individual patient’s needs.

Follow-Up Care

Brain tumors or other neurological complications of cancer can have long term effects on children and their families, even after the last treatment of chemotherapy or radiotherapy has been given. Follow-up treatment for childhood brain tumor survivors address any long-term physical, psychological, social and intellectual challenges they encounter as a direct result of their treatment in the neuro-oncology clinic.

Psychosocial programs such as family support, education, community support and school reintegration are weaved into the condition management of the child. The STAR Late Effects Program is an important part of the follow-up care for a child in the neuro-oncology clinic, because it ensures that a child is still progressing in developmental and cognitive growth even after the side effects of treatment. Screenings, diagnostic testing and neuropsychological tests can be ordered to ensure that there aren’t negative, long-term effects on patients who received radiotherapy or chemotherapy in the brain and spinal cord area.

Vist the Neuro-Oncology Clinic.

 

Miller Children’s Hospital Long Beach
2801 Atlantic Ave., Long Beach, CA 90806
(562) 933-5437

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MemorialCare Health System is a not-for-profit integrated-delivery system which includes Long Beach Memorial Medical Center, Miller Children’s Hospital Long Beach, Orange Coast Memorial Medical Center and Saddleback Memorial Medical Center in Laguna Hills and San Clemente. Our community-based hospitals are located in Southern California in both Los Angeles County and Orange County. Copyright © 1999 - 2009, Memorial Health Services. All rights reserved.